
This one`s about therapy!
If you are having a baby with down syndrome, the first thing you will hear is "you are going to spend soooo much time with therapy."
Well, in our case we had a lovely lady doing the physical therapy one time per week. There are two ways of exercises and therapy, one is called Bobath and is more about playing, the other one is called Vojta and is more likely exercises. We started with Bobath, turned then to Vojta and went back to Bobath again at that point where I couldn`t stand it to hear Mia cry all the time. It was not because she was hurt, more then she just didn`t like to do those exercises. This lady was beautiful. She told me a lot, not only about physical therapy but more about the things in front of me, and the most important thing: It`s about the quality.
It`s not about WHEN Mia is going to talk, walk or whatever, it`s about HOW she does it. If it takes a little bit longer until she does her first steps, than it is ok! We work with her that her first step is done when everything else is balanced and she is just ready. Everything slow and steady. And Mia was doing great. When we did Bobath exercises she really liked it when I praised her! She had really fun with it.
Well, in our case we had a lovely lady doing the physical therapy one time per week. There are two ways of exercises and therapy, one is called Bobath and is more about playing, the other one is called Vojta and is more likely exercises. We started with Bobath, turned then to Vojta and went back to Bobath again at that point where I couldn`t stand it to hear Mia cry all the time. It was not because she was hurt, more then she just didn`t like to do those exercises. This lady was beautiful. She told me a lot, not only about physical therapy but more about the things in front of me, and the most important thing: It`s about the quality.
It`s not about WHEN Mia is going to talk, walk or whatever, it`s about HOW she does it. If it takes a little bit longer until she does her first steps, than it is ok! We work with her that her first step is done when everything else is balanced and she is just ready. Everything slow and steady. And Mia was doing great. When we did Bobath exercises she really liked it when I praised her! She had really fun with it.
We went to see a speech therapist, but only once. We wanted to start with that when Mia was 6 months old but then had to go to hospital. I assume we would have had an appointment every 2 weeks or so.
We were also on a waiting list for early development, which would have been once a week at home.
If you want to count in the cardiological checkups, those were every 3 months.
You see, we had a lot of time for a "normal" baby day. Like going to a PEKiP-group which means Prague programme for parents and children. Mia was very welcome there and felt comfy.
