Get it down; 31 for 21 - Day 3

When I was home with Mia I tried to sort out everything, there was so much information to be read and so much new to get to known to. Not only a newbie at home, but more everything else than expected. Anyways, I never doubted Mia would be simply wonderful. At least I didn`t have anything to compare as Mia was the first baby. On the other hand, you know all how it feels if a little one gets ill. You are afraid of doing the wrong thing, do I annoy the doctor if I go there again, what the heck is wrong, is it the stomach, is it.....what ever. In my case, due to experiences with the need of PICU right after birth, I was kind of hysterical and yep, I guess I overprotected her anytime she was looking like getting ill or so. Knowing about her big ASD II (Atrium Septum Defect II, 10 mm) didn`t feel to be relaxed.

The first weeks I read everything I could find on the Internet as there are not really many books that are new. Sometimes I felt fear of the future when I looked through those old books, to see those pictures of people with Down-Syndrome. In these days Connys book "Außergewöhnlich" meant the world to me. This is really a milestone for every new mother of a special needs-baby. This book is incredible. It gives hope, it gives strenght and it shows you the real down-syndrom. If I should choose what gave me the most power from all the information, then definately this book is to be mentioned. It shows lovely pics from Children with Down-Syndrome and their mothers. This book was given to me from one nurse while Mia was in the PICU. A nurse I necer had contact with, but I guess "our Story" went quickly through the hospital. Sad, sad, that this book was at the station where I stayed for 1 week and nobody who was in contact with me all the time saw the need to give it to me. Well, I got it and I am very thankful for that. I showed those pictures to my parents and friends so that everybody could see the beauty in down-syndrome.

By the way, Conny just republished the second part, and this ones about the daddys ;-)
Please, have a look and explore the real face of Down-Syndrome:


http://vaeterbuch.blogspot.com/
http://www.connywenk.blogspot.com/


Thank you.